Comments on: To remind ourselves how lucky we are http://telltaleblog.com/2009/04/27/to-remind-ourselves-how-lucky-we-are/ The Tell Tale Blog Sun, 05 Sep 2010 04:02:10 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Alexandra http://telltaleblog.com/2009/04/27/to-remind-ourselves-how-lucky-we-are/comment-page-1/#comment-1265 Alexandra Tue, 28 Apr 2009 17:34:02 +0000 http://telltaleblog.com/index.php/2009/04/to-remind-ourselves-how-lucky-we-are/#comment-1265 I am thinking about buying her book. The good news is that research for a cure for CF is going rather well so there might be a treatment available soon. I am thinking about buying her book.
The good news is that research for a cure for CF is going rather well so there might be a treatment available soon.

]]> By: Andra http://telltaleblog.com/2009/04/27/to-remind-ourselves-how-lucky-we-are/comment-page-1/#comment-1264 Andra Tue, 28 Apr 2009 10:33:50 +0000 http://telltaleblog.com/index.php/2009/04/to-remind-ourselves-how-lucky-we-are/#comment-1264 "But last month it became clear to the doctors, to her family and to Laura that the new lungs were failing and there was no more fixing to be done. She left the hospital to spend the time she had left at her new home, the apartment she was renting with her boyfriend, Brian. For someone who had spent so much of her life either in the hospital or under her parents care, Brian -- and the apartment -- had, for the last year, represented an independent life, the kind 22-year-olds are supposed to have. The way Laura lived her life was also the way she prepared for her death. Over the last few weeks, Laura organized her own memorial service. She decided she would be cremated and her ashes would be scattered into the ocean where she had gone as a kid. She said goodbye to more than 100 friends and relatives. Laura did just about everything but write her own obituary. And in a way, she did that too. About six months ago, on the very last tape that she recorded for her diary, Laura talked about all of this, what it would be like when she finally died." You can listen to someone who in spite of everything lived and died mostly on their own terms here: http://www.npr.org/programs/atc/features/2002/aug/socalledlungs/index.html RIP Laura Rothenberg. “But last month it became clear to the doctors, to her family and to Laura that the new lungs were failing and there was no more fixing to be done. She left the hospital to spend the time she had left at her new home, the apartment she was renting with her boyfriend, Brian. For someone who had spent so much of her life either in the hospital or under her parents care, Brian — and the apartment — had, for the last year, represented an independent life, the kind 22-year-olds are supposed to have.

The way Laura lived her life was also the way she prepared for her death. Over the last few weeks, Laura organized her own memorial service. She decided she would be cremated and her ashes would be scattered into the ocean where she had gone as a kid. She said goodbye to more than 100 friends and relatives. Laura did just about everything but write her own obituary. And in a way, she did that too.

About six months ago, on the very last tape that she recorded for her diary, Laura talked about all of this, what it would be like when she finally died.”

You can listen to someone who in spite of everything lived and died mostly on their own terms here:
http://www.npr.org/programs/atc/features/2002/aug/socalledlungs/index.html

RIP Laura Rothenberg.

]]>